Today was a rough day, so I got the GM to come over and push me around in the wheelchair whilst I did my errands.
First stop – GP (My local practice, RL, the one that I’d complained about), to get the remains of the weekend sorted out; A new doctor (I’m going to call her Dr F) who was improbably young and made me think of Bernard Black’s Summer Girl, and was amazingly caring and listened really well and was happy to discuss muscle relaxants and antispasmodics with me. Agreed that diazepam isn’t appropriate long-term, but also agrees that taking something else prophylactically would be a bad idea. So she’s looking up to see if I can use what are usually prophylactic antispasmodics as PRN ones. I mentioned that Dr S had also mentioned that I might have a calcium or vitamin D deficiency that makes them worse, so she agreed to send me for bloods.
Best yet, when I explained that I wanted to be back at rheumatology to swot up on what I needed to know before my specialist referral, and to find out where CA’s knowledge gap was so that I could ask the right questions. She approved of this really, really well, and referred me straight back to Dr W at CA’s rheumatology.
So out I went, and managed to get an appointment to get bloods taken – In literally half an hour. Just enough time to nip down to the polling station and vote in both the Euro and council elections. Of course, the polling station wasn’t wheelchair accessible, and the actual polling booths were too small for me to fit the chair into, so I filled out my voting cards on a chair in a corner and just trusted that nobody was watching me. Seriously, there were the three major parties, and then SIX far-right/hard-right/anti-EU/racist/anti-immigration/single-issue fuckers. I worry, I do.
And then back to RL, picked up more diazepam from the pharmacy (Where the nice scottish pharmacist was very sweet to me, and came out from behind the desk to talk to me, asked how I was since he wasn’t used to seeing me in the wheelchair, and checked that I was aware that the diazepam might make me a bit woozy. I asked if it’d be a bit like the morphine, and he said it’d be a lt like the morphine, and we had a bit of a chuckle.
Then on to the phlebotomist, who only had ten minutes before the shuttlebus took her home, so she had to get the bloods out in double-quick time; usually a nightmare since my veins are really difficult to find usually. She tried my usual good vein (Back of the right hand) which failed, and then took from the left elbow with a vacuette, which worked much, much better than the usual long tubes. My previous shot at phlebotomy involved both wrists, both elbows, both ankles, my inner thigh and my hip just above the pubic bone. And no blood.
So, overall, a good day medically speaking. Tomorrow is occupational therapy, at CA again, where I should get a litle bit more of my awesome exoskeleton.
Current treatment status;
Hypermobility Specialist: Referred
Occupational Therapy: Under care