Time has moved on. I’m a long way away from the worlds I lived in when my last few blogs died the death.
Nowadays, I’m ill. This is my blog that I’m going to post in so that my friends don’t have to put up with my constant whining about dealing with the NHS.
I have Joint Hypermobility Sydrome, still under investigation, and yesterday I got a letter of referral down to UCLH, under the care of Dr Kk, at the end of August. I’ve had 6 months of physio (Discharged in April) first with Mircalla (who was amazing) and then with GLADOS (Names obviously changed to faintly protect their identities; In real life they’re two of the C-Series, more on that later), one appointment with Dr W at rheumatolgy last August, an appointment with the pain team in April which was kind of amazing, really.
The day before that, I was in A+E, being manhandled by a consultant who firstly didn’t introduce himself, secondly thought that his two-second dekko at my legs (still under a blanket) gave a more accurate diagnosis of “Not a dislocated hip” than Dr S’s careful and through examination the day before which, in agreement with my previous physiotherapists, diagnosed “That’s a dislocated hip.” and thirdly who manhandled me with neither my consent or a chaperone; Damaging my hip even further.
This morning, I was at acupuncture (Provided by the NHS) which turned out to be the biggest waste of my time that’s ever been concieved. Two hours’ travelling, to get there for 9am, at which point I was treated to having to lie face-down with my head at a ninety degree angle and my shoulders hanging loose, whilst Physio D put eight tiny needles into my lower back (For funding reasons, she wasn’t allowed to treat my upper back pain). Ten minutes later, they were removed. Physio D then returned, and we agreed that acupuncture wasn’t appropriate for me – The travelling and the treatment were both too much stress for my joints to take (The problem being not the needles, but the lying very still). She then told me that she’d keep me on the register, but not make me any more appointments. Very much with the same nudge and wink as Dr L from the pain clinic had given me when prescribing me acupuncture in the first place (She too is a sceptic) that this was basically a way of making sure that the clinic didn’t end up being prescribed to people whom it’d really hurt.
This afternoon was a long, long letter and reasonably-long phone call to my MP – Of the opposite political orientation to me, but still apparently a nice bloke – in which he promised to sort out the problem with my GP’s practice (Or rather, the receptionists therein and the booking process; It’s always impossible to get an appointment).
And tomorrow, lo, I finally managed to get an appointment with a GP – not my GP, but a GP. It’s a start.
Friday is my second OT appointment – the first one set me up with wrist braces, and I think this one will get me measured up for knees and elbows.
I am in so much pain right now.
Current treatment status;
Hypermobility Specialist: Referred
Occupational Therapy: Under care