Well, that went about as well as expected.
Apparently, all I need to do is be more disciplined about getting up early in the mornings, so that I’ll be tired by an appropriate time at night! Gee golly, I’d not thought of that in the eighteen years that my sleep pattern has been a problem. I tried to explain that it wasn’t a matter of “No, just another five minutes in bed…” it was “Someone can literally be shaking me, slapping me, trying to wake me up with alarms and lights, and I will fall asleep again, standing up, or vomit” but apparently that’s just a matter of willpower.
My exact words were “That’s like telling a depressed person to just smile more.” and Dr Ly looked very sad at that, then came back to it a while later in the conversation to apologise and clarify that she “wasn’t trying to be flippant” so maybe, just maybe, she’s understanding the problem.
And then there was the Stanmore stuff.
UCLH claim that they sent the referral off on-time in July 2014. Stanmore claim never to have recieved it.
My local GP doesn’t have the full copy of the letter (Which I’ll blame on RL, since they’ve got page 1 and page 3, but not page 2, which was on the back of page 1, suggesting that a receptionist failed to check that they’d scanned it all in) but once they do, since the missing page is the one which says “Refer the patient to Stanmore” they’ll be able to backdate my referral to 2014, and hopefully get me bumped up the order.
Good thing I keep my own records, isn’t it?
For the record, this is the “lost” letter. It’s a pretty fucking important one.
Look at that list on the second page. Let’s see whose responsibilities they were, and if they’ve been upheld;
- Better pacing. More swimming. My responsibility. Carried out.
- Work on core strength. My responsibility. Carried out.
- Drink more water, eat more salt. My responsibility. Carried out.
- Regular physio every 4-6 months. Local Hospital Trust’s responsibility. Not carried out.
- CBT for pain. Local Hospital Trust’s responsibility. Carried out.
- Stanmore referral. UCLH’s responsibility. Not carried out.
Effectively – The only person to not lose their wicket here was me.